Diagnosis: Retinoblastoma When my son, Ammiel was just three months old, I noticed that there was a transparent white film on his right pupil. Around the same time, I noticed a glow in his eye in the sunlight when he was outside of our house. …
Know The Glow Joins IAPB
During the pandemic, KnowTheGlow (KTG) jumped in feet first launching targeted digital social campaigns internationally, bringing its mission of building awareness to help in detecting early childhood blindness to countries around the world. As Emily Dickinson once said “Forever is composed of NOWS” and with …
Jasen’s Glow Story
Diagnosis: Retinoblastoma The first time Wendy saw the “flash” in her son Jasen’s eye, she thought she may have imagined it. Jasen was just three months old and as Wendy laid him on the bed to change his clothing, the light hit his eye at …
Interview with Dr. Munir Ahmed, Country Director for Orbis Bangladesh
In 1984, Munir Ahmed, the current Country Director for Orbis Bangladesh, was looking for help with his own eyes when he came to Dhaka and met with the eye doctors of Orbis. The experience left an indelible mark on him and he immediately knew, both …
The Bridge to Brisbane – Kellie Perren
Earlier this year, we at KTG shared a story about a then five year old little warrior from Queensland, Australia named Isabelle. (https://www.thesun.co.uk/fabulous/9111435/mum-daughter-eye-cancer-white-glow-photo/). We spoke of how Isabelle’s mother, Kellie, noticed a Glow in her daughter’s eye and how this Glow led Isabelle to …
Interview with Dr. Mahmooda Rahman
Dr. Mahmooda Rahman, an amazing and inspiring pediatric Ophthalmologist at OSB(Ophthalmological Society of Bangladesh) Eye Hospital, had always admired how her mentor, Dr. Sabbir Anwar, worked with children. There was a passion there; a desire to take the time to talk to the children and …
Eli’s Glow Story
Diagnosis: Coats’ Disease When Eli was just seven months old he began to exhibit persistent high fevers. These fevers became very alarming to his parents, Christina and Shawn Gill. They were common and could reach as high as 107 degrees! Eli was also sleeping …
Chloe’s Glow Story
Diagnosis: Bi-lateral Retinoblastoma Trisha says that March 3rd of 2011 was the day their lives changed forever. Trisha’s daughter, Chloe, had seen her pediatrician a few days earlier for a scheduled nine-month well visit. At this exam her pediatrician, Dr. Draker became concerned as he …
Robert and Kim Molter- PNT School of Optometry
Robert and Kimberly Molter had enjoyed dual practices in Michigan but when the opportunity presented itself to sell their practices, they did and happily began the next chapter of their lives- retirement. Regrettably, for Robert, it wasn’t long before he was asking “What now?” Megan …
Interview with Sandra Staffieri
Megan Webber, Co-Founder of KnowTheGlow, has known Sandra Staffieri for several years but never really knew the story of how she came to be such a strong advocate for leukocoria awareness in young children and for families with retinoblastoma. Sandra is currently a Research …