Aakanksha’s Glow Story

Diagnosis: Retinoblastoma Introduction:KnowTheGlow had the opportunity to speak with Anita and Aakanksha Gupta last month—a mother and a daughter who share a common diagnosis of retinoblastoma and triumphant recovery. As you’ll read in Aakanksha’s own words, her surgery was slightly delayed due to the Covid-19 but …

Kay-La’s Glow Story

Diagnosis: Retinoblastoma Kay-La Ann says she is forever grateful to her Uncle and family’s intuition.  She was only 5 months old when they noticed a strange Glow in Kay-La’s eyes while the family was moving her Uncle into a new home. After this was brought to …

Walker’s Glow Story

Diagnosis: Retinoblastoma This is our hero, Walker. He is currently twenty-one months old. Walker was born with two congenital heart defects, TAPVR & ASD, and had open heart surgery at only six weeks of age. Since Walker’s repair, he has had clear echos and we are …

Sophie’s Glow Story

Diagnosis: Retinoblastoma I was only 21 months old when my family was spending our last weekend of summer at our house in the Hamptons for Labor Day Weekend of 1997.  Over that weekend my mom started to notice a silver flash in my right pupil. The …

Lucas’ Glow Story

Diagnosis: Retinoblastoma I had very worrying thoughts after noticing “the Glow” in my sons eye when taking a picture. I immediately thought my son had retinoblastoma. It didn’t matter how many times I took a picture, it would still be the same. After searching on google, …

Josie’s Glow Story

Diagnosis: Retinoblastoma Superhero Josie says she loves her new eye—and we love the story of bravery that her new eye symbolizes! An annual wellness visit showed that four-year-old Josie had vision loss in one eye, and she was quickly diagnosed with Retinoblastoma.  We are so proud …

Amber’s Glow Story

Diagnosis: Retinoblastoma  Amanda and Scott remember noticing a Glow ever so often in their daughter, Amber’s, right eye when she was as little as two weeks old.  “The Glow” would appear much as a glow appears in a cat’s eye, a yellow-greenish iridescent glow within the …

Jacksen’s Glow Story

Diagnosis: Retinoblastoma  Amanda and her husband Jack welcomed their son into the world on in September of 2017.  Jacksen was a perfectly healthy little boy and Amanda and Jack were happy to start their new family life together in their home of Kauai, Hawaii.  Looking back, Amanda …

Gage’s Glow Story

Diagnosis: Retinoblastoma  Gage was diagnosed with retinoblastoma in May of 2015. He was two years old at the time when I noticed a weird glow in his right eye. I took him to the doctor’s office three days later and they didn’t know what it was, so they …

Braelyn’s Glow Story

Diagnosis: Retinoblastoma  In March 2017, our world came crashing down when we were told our sweet 9-month-old daughter, Braelyn, was diagnosed with an eye cancer called retinoblastoma.  We scheduled an appointment with a pediatric ophthalmologist after noticing that her eyes would shake when she tried to …