All Glow Stories of Children Diagnosed with Retinoblastoma
Our journey began in 2020, when Hannah was an infant and the world was going crazy managing a pandemic. Day care centers were closed, I was working remote, and well child visits were being done virtually. One day, when Hannah was about 10 months old, …
In early September, just weeks after returning to Colorado Springs, Colorado, from competing in his second Paralympic Games in Paris, paratriathlete Kyle Coon was contacted by Megan Webber, Co-Founder of Know the Glow (KTG), and Helene Dameris, KTG’s Director of Global Outreach. Inspired by his …
When Wes was just two years old, his mother noticed an unusual glow in flash photos of her son. Concerned by what she saw, she brought it to the attention of their pediatrician, who dismissed it as nothing alarming. However, trusting her instincts, Wes’ mother …
Isabelle’s retinoblastoma journey, written by her mother Jeannie Isabelle (Izzy) began life 100% healthy. She was thriving and hit every developmental milestone. The tests given at her pediatric visits were all normal, even a red eye reflex exam that was administered at her one year …
Earlier this month, Megan Webber attended the One Retinoblastoma World Conference in Honolulu, Hawaii, and left feeling more hopeful than ever about the future of early detection and global collaboration in retinoblastoma awareness. The event brought together an incredible array of voices—including parents, survivors, oncologists, …
Iksha is dedicated to supporting pediatric eye cancer patients and their families in their diagnostic and treatment journeys. Iksha hosted a lecture led by a Retinoblastoma expert for over 200 Medical practitioners working at primary health centers run by the local municipality in Bengaluru, India. …
Diagnosis: Retinoblastoma Kait Weber was well aware of Retinoblastoma (RB), a rare cancer that can develop in the back of the eyes of children. Her maternal aunt sadly had passed away at just 4 years of age after a long battle with RB. Her mother …
Bella O’Neill was just 3 when we took her to Specsavers for a lazy eye. Being a young mum who would have thought 3 weeks later we would find ourselves at The Royal London Hospital seeing Dr. Reddy, hearing words that kept repeating in an …
Chantal Porter says the first time she considered her 3 year old son, Amir, may have a visual issue was the summer of 2023 when her 7 year old daughter told her that she was noticing a “Glow” in her brother’s eye. At the time, …
Written by Matt & Keely Dammann (Colter’s parents) Around Colter’s first birthday we started to notice the iris of his right eye was a darker shade of blue. As the summer went on, we noticed it continue to darken compared to his left eye. Initially, …
