In a world where childhood cancer often arrives without warning, moments of connection between those working to change that reality can feel quietly powerful. When Megan Webber and Helene Dameris were able to connect over zoom with Marie-Françoise Ray, President, and Marie Botto, Communication Manageress, …
Introducing Lynn Tarabey
At KnowTheGlow, Co-Founder Megan Webber and Director of Global Outreach Helene Dameris recently met with Lynn Tarabey, a 25-year-old retinoblastoma survivor from Lebanon whose extraordinary story reflects resilience, leadership, hope and compassion. Lynn was just two years old when she was diagnosed with unilateral retinoblastoma …
Clelia’s Glow Story
Story in English – Clelia’s Retinoblastoma as told by her mother: Clelia was born in Naples, Italy on a very hot night in June of 2022. To this day I remember how beautiful her eyes were, they were as blue as the sea and the …
Retinostop – Meet The Team
In a recent meeting, the luminous dedication of Dr. Laurence Desjardins, Erika Leiman, Vice President Marie Françoise Ray, and President Catherine Bothorel of Rétinostop shone as brightly as their cause: raising awareness about Retinoblastoma (RB), a rare eye cancer affecting children in France. Together with …
The Ocularist with Singular Vision
Elisabelle St-Hilaire @Elisbellexo Credentials: B.Sc.HSS, COO. R.B survivor, former Canadian Football League cheerleader, digital advocate and Ocularist, Elisabelle St-Hilaire shares her story with Know the Glow. Elisabelle St-Hilaire, an ocularist from Montreal, Quebec, knew at the age of 12 that this was what she wanted …
Meet Laurence Desjardins
Over the last few years, KnowTheGlow has made a concerted effort to look beyond the borders of its home base in the United States. We have learned just how important it is to take a more global perspective and have sought to find those who …
Interview with Dr. Juame Català
Dr. Jaume Català-Mora had wanted to be a doctor from a very young age, but it was life itself that specifically led him to become a pediatric retinal ophthalmologist. Dr. Català-Mora studied ophthalmology at the Bellvitge Hospital and found himself gravitating toward retinal diseases. It …

