Stories To Inspire Us All
Diagnosis: Bilateral Retinoblastoma On May 10, 2017, Kristina Luna gave birth to a perfectly healthy little girl she named Arielle. Arielle passed all the wellness exams in the hospital and was sent home a few days later. When Arielle was about a week old she started …
Diagnosis: Amblyopia A couple months prior to Chipper’s third birthday we noticed that he would occasionally turn his left eye inward. At first, we thought he was just being silly. This prompted us to look back through his pictures and we were shocked to find several pictures …
Diagnosis: Coloboma Zach & Kati Simmons were sitting in the pediatrician’s clinic with their then four-day old baby girl, River Laine, waiting for her discharge appointment. River was finally bright-eyed and looked up at the florescent lights – Kati was surprised at what she saw. She …
Diagnosis: Coats Disease For a couple months, Mike and I had been noticing that Jack’s right eye was lazy at times. When I took Jack and one of his sisters to the pediatrician for a physical at the beginning of June 2015, the pediatrician didn’t see …
Diagnosis: Familial Exudative Vitreoretinopathy (FEVR) Emily started to notice something may be wrong with her son just weeks after his birth. Dezmond “Dez” was only six weeks old when they noticed both of his eyes were shaking continuously. Alarmed, Emily took him to see his pediatrician. …
Diagnosis: Persistent Fetal Vasculature Sadie was only two months old when her father, Drew, first sensed something may be impacting his daughter’s vision. Sadie’s right eye had a tendency to turn inward, especially when she was sleepy. When sharing his concerns with Sadie’s mother Ashley, who …
Diagnosis: Coats Disease Fall 2013 was a challenging time for 9-year-old Matthew. He was finally having surgery to correct a condition that caused his foot to point inward. This surgery required Matthew to stay home from school for a few months to recover. During those weeks at home, his …
Diagnosis: Bilateral Retinoblastoma Natalia Cornejo may know Retinoblastoma better than most anyone. She not only battled Retinoblastoma as a child, but faced the disease head on a second time after her son was given the very same diagnosis. Together they have fought and together they have …
Diagnosis: Coats’ Disease In December 2016, the Fortner family moved to Fort Meade, Md., where 5-year-old Jeremiah started in a new kindergarten class. Just two weeks later, he came home with a note that would change the direction of his life. Jeremiah had failed the school …
Diagnosis: Bilateral Retinoblastoma In October 2015, Leslie started to notice a strange glow in her son Parker’s eye during every day activities. Parker was only 6 months old at the time and Leslie did not know what to think of the Glow that she was noticing. …
