Diagnosis: Coats’ Disease It all started back in 2004, when my son Diaz was 4 years old. He was playing with his cousins at my sister’s house and my sister noticed that he was squinting. I didn’t think much about it and scheduled an appointment at …
Walker’s Glow Story
Diagnosis: Retinoblastoma This is our hero, Walker. He is currently twenty-one months old. Walker was born with two congenital heart defects, TAPVR & ASD, and had open heart surgery at only six weeks of age. Since Walker’s repair, he has had clear echos and we are …
Lachlan’s Glow Story
Diagnosis: Amblyopia During December of 2019 we started to notice that our two and a half year old son Lachlan’s eye had a slight turn. We didn’t think too much of this and decided to just watch it until after the Christmas holiday. But in January, …
Sophie’s Glow Story
Diagnosis: Retinoblastoma I was only 21 months old when my family was spending our last weekend of summer at our house in the Hamptons for Labor Day Weekend of 1997. Over that weekend my mom started to notice a silver flash in my right pupil. The …
Aaron’s Glow Story
Diagnosis: Cataract In my infinite scrolling of the internet, I came across a story of a little boy whose grandmother noticed that his eye was reflecting white (instead of red) in pictures, and in the end, that led to the child’s diagnosis of a rare cancer …
Lucas’ Glow Story
Diagnosis: Retinoblastoma I had very worrying thoughts after noticing “the Glow” in my sons eye when taking a picture. I immediately thought my son had retinoblastoma. It didn’t matter how many times I took a picture, it would still be the same. After searching on google, …
Josie’s Glow Story
Diagnosis: Retinoblastoma Superhero Josie says she loves her new eye—and we love the story of bravery that her new eye symbolizes! An annual wellness visit showed that four-year-old Josie had vision loss in one eye, and she was quickly diagnosed with Retinoblastoma. We are so proud …
Ethan’s Glow Story
Diagnosis: Coats’ Disease This picture. THIS PICTURE! If only I had known about “the glow” when I took this picture. We had just changed the lighting in our living room the morning I took pictures for our family Christmas cards. Why does Ethan’s eye have this …
Amber’s Glow Story
Diagnosis: Retinoblastoma Amanda and Scott remember noticing a Glow ever so often in their daughter, Amber’s, right eye when she was as little as two weeks old. “The Glow” would appear much as a glow appears in a cat’s eye, a yellow-greenish iridescent glow within the …
Jacksen’s Glow Story
Diagnosis: Retinoblastoma Amanda and her husband Jack welcomed their son into the world on in September of 2017. Jacksen was a perfectly healthy little boy and Amanda and Jack were happy to start their new family life together in their home of Kauai, Hawaii. Looking back, Amanda …