Fariha’s Glow Story

Diagnosis: Retinoblastoma As many in the KnowTheGlow community have come to learn, it is vitally important that you have a strong support system around you when you have a child that has been given a difficult diagnosis. Thanks to the support and compassion of Farheen …

Nixon’s Glow Story

Diagnosis: Amblyopia Kathy kept a very close watch on her two boys, always looking for signs of any visual issues.  Kathy had been treated when she was five years old for an astigmatism that led to amblyopia.  She wore glasses, and with patching therapy, was …

Pooh’s Glow Story

Diagnosis: Retinoblastoma It was a late afternoon nearly four years ago in Hanoi when Tanya found herself sitting by the window holding her 3-month-old baby girl.  In that light, she noticed a glimmering glow in her baby’s eye. Tanya’s mother is a nurse and so …

Santiago’s Glow Story

Diagnosis: Retinoblastoma English This month, KnowTheGlow Co-Founder Megan Webber sat down to speak with Amanda Hernandez, a Venezuelan-Canadian mother of a Retinoblastoma survivor. Amanda, her husband, and their oldest son moved from Venezuela to Canada in 2012. In 2015, their youngest son, Santiago, was born.  …

Little Bang’s New Eye

Megan Webber sat down this month to speak with Lara Damiani, director/producer of the beautiful documentary, “Little Bang’s New Eye,”  to learn about what inspired her to tell Bang’s story.  In a captivating 14 minute short film, Lara managed to capture this amazing journey. Throughout …

The Extraordinary Eye by Taline Dorna

 As a primary education teacher in Toronto, Canada, Taline Dorna was accustomed to having a lesson plan for her students; always organized and ready to inspire each of her students  anew every day. No doubt, KnowTheGlow Co-Founder, Megan Webber, envied the backdrop of her zoom …

Jake’s Glow Story

Diagnosis: Coats’ Disease Christina says that during the first years of Jake’s life, he was very sensitive to light. She did not think much of this sensitivity in her son as he was very young and she thought that light sensitivity would be normal. When Jake …

Gabriel’s Glow Story

Diagnosis: Retinoblastoma Yesenia will tell you that her son, Gabriel, is her favorite superhero.   Gabriel was born a very healthy little boy. For the first year of his life, Yesenia and her husband had no concerns about his physical well-being.  However, just a few months …

Grant’s Glow Story

Diagnosis: Coats’ Disease Melissa and her husband noticed that their son, Grant, began to develop a wandering eye when he was about three years old. Over time, this misalignment became more and more noticeable.  Concerned, they began looking for a nearby doctor to have him checked …