Diagnosis: Amblyopia During December of 2019 we started to notice that our two and a half year old son Lachlan’s eye had a slight turn. We didn’t think too much of this and decided to just watch it until after the Christmas holiday. But in January, …
Diagnosis: Retinoblastoma I was only 21 months old when my family was spending our last weekend of summer at our house in the Hamptons for Labor Day Weekend of 1997. Over that weekend my mom started to notice a silver flash in my right pupil. The …
We want to give a huge shoutout to CBS This Morning for sharing the vision-saving technology ‘Cradle’. We hope the millions of viewers of this clip are now aware of the glow and will download the app if any suspicions arise in their children’s photos.
Diagnosis: Cataract In my infinite scrolling of the internet, I came across a story of a little boy whose grandmother noticed that his eye was reflecting white (instead of red) in pictures, and in the end, that led to the child’s diagnosis of a rare cancer …
Diagnosis: Retinoblastoma I had very worrying thoughts after noticing “the Glow” in my sons eye when taking a picture. I immediately thought my son had retinoblastoma. It didn’t matter how many times I took a picture, it would still be the same. After searching on google, …
Diagnosis: Retinoblastoma Superhero Josie says she loves her new eye—and we love the story of bravery that her new eye symbolizes! An annual wellness visit showed that four-year-old Josie had vision loss in one eye, and she was quickly diagnosed with Retinoblastoma. We are so proud …
Diagnosis: Coats’ Disease This picture. THIS PICTURE! If only I had known about “the glow” when I took this picture. We had just changed the lighting in our living room the morning I took pictures for our family Christmas cards. Why does Ethan’s eye have this …
Diagnosis: Retinoblastoma Amanda and Scott remember noticing a Glow ever so often in their daughter, Amber’s, right eye when she was as little as two weeks old. “The Glow” would appear much as a glow appears in a cat’s eye, a yellow-greenish iridescent glow within the …
Dr. Helen DimarasPicture and bio information from: http://www.sickkids.ca/AboutSickKids/Directory/People/D/helen-dimaras-staffprofile.html Intro: Dr. Helen Dimaras is a Scientist in the Child Health Evaluative Sciences program and Centre for Global Health and Director of Global Eye Health Research at SickKids. She is also an Assistant Professor in the Department …
The University of Notre Dame joined forces with Know The Glow at a recent rare disease conference to highlight their impactful awareness campaign for “the Glow”—an awareness message that has traveled to Israel and been translated into Hebrew, a language spoken by 9 million people …
