Lauren joined Know the Glow in 2019 seeking information and support after her son was diagnosed with Retinoblastoma. In October of 2018, Lauren saw the glow in the left eye of her 8-month-old son, Theo. Within weeks, doctors enucleated Theo’s eye, removed 10mm of Theo’s …
Kenna’s Glow Story
Diagnosis: Haemangioma Kenna’s Journey… When Kenna was six months old, her mother noticed a glow in Kenna’s left eye. It was not predominantly noticed in pictures. She just caught a glow in her daughter’s eye at unusual angles in the dark. She noticed it but …
Gracie’s Glow Story
Diagnosis: Retinoblastoma Last week, KTG had the chance to meet Gracie, the little girl who “kicked cancer” with her smile and inimitable character, and that’s just what her FB page reflects… https://www.facebook.com/graciesfightagainstretinoblastoma. As the page reads, “Gracie is kicking cancer’s butt!” In a conversation with …
Interview with Marissa Gonzalez
When speaking with Marissa Gonzalez one can’t help but be moved by the extraordinary gift of this amazing woman. Both a cancer survivor herself and an advocate helping other retinoblastoma families navigate through the storm, she has been a guiding light for so many families! …
Evie’s Glow Story
In December of 2019, I first noticed what looked like a coating across my daughter Evie’s right eye. I only noticed this when I looked at her from the side angle in the sunlight. I mentioned what I was noticing to my husband who could …
Meet Laurence Desjardins
Over the last few years, KnowTheGlow has made a concerted effort to look beyond the borders of its home base in the United States. We have learned just how important it is to take a more global perspective and have sought to find those who …
Liam Reid’s Glow Story
Diagnosis: Retinoblastoma When Liam Reid was just two years old his grandmother began noticing a strange “glow” in his eye. This glow was only visible to her in certain lighting and certain angles. However, she informed Liam’s mother, Staci of what she was noticing. At …
Meet Kerri Wilson
Kerri Wilson is a great believer in never walking past an opportunity. She has been an ocularist in Sydney, Australia for 30 years. As Megan Webber, co-founder of Know The Glow, discovered over a zoom conversation the road to becoming an ocularist was not the …
Adventures with Darian at SEE
My name is JoAnne Longtin-Rames and I am a parent to a child with Coats’ Disease. “Know the Glow” is something I am painfully aware of now although at the time when I saw it in my son’s eye in a photograph, I did not …