Retinoblastoma

Sam’s father, Charlie, was born with Retinoblastoma. Despite his mother’s concerns, it took five months until his doctors took her seriously and discovered he had this potentially fatal cancer. At the time of his diagnosis, Charlie was six months old and his tumor had advanced …

Diagnosis: Retinoblastoma We first noticed a “cloudiness” in Luca’s right eye in November or December of 2021. He was about 10 months old at the time and has blue eyes, so we thought it had to do with that and really didn’t think anything of …

Diagnosis: Retinoblastoma Ryu is only ten years old but has already fought a battle most will never face in a lifetime. When Ryu was only six months old his mother, Agatha, sensed there was something not quite right. Ryu’s left eye would periodically drift. Agatha …

Carme Julià Ferré, a professor in the Department of Computer Science and Mathematics at la Universitat Rovira i Virgili in Tarragona, Spain  is the extraordinary mother of two beautiful daughters, Anna and Julia. When Julia was eight months old, she was diagnosed with Retinoblastoma. Fortunately …

Diagnosis: Retinoblastoma Our daughter, Isla was diagnosed with bilateral heritable Retinoblastoma at 10 weeks of age. I first mentioned Isla’s eyes to our pediatrician while still in hospital after giving birth. I was worried the way her eyes were tracking seemed irregular and she often …

Diagnosis: Retinoblastoma Kelly Morton developed a strabismus (lazy eye) at a young age. She was treated with patching therapy for over a year and wore glasses to correct her misalignment.  These measures were a complete success and she had no further visual issues. Later in …

Diagnosis: Retinoblastoma I would like to introduce our story with a little background.  I am a 38-year-old retinoblastoma survivor. In 1984, my mom was able to capture the glow in my right eye with flash photography.  This Glow led her to discover my cancer, and …

Diagnosis: Retinoblastoma My name is Jonathan Smith.  My family and I live in Brisbane, Australia.  I am the proud father of a Retinoblastoma warrior – Theadora. I am honored to be invited by “Know the Glow” to share our story, especially because the information provided …

Diagnosis: Retinoblastoma Our journey is one of perspective, persistence, hope and gratitude. This is our story. Our first child, Eloise, was born in October of 2013 – a tiny bundle who loved to be swaddled and rocked. Just after her first birthday, we began noticing …

Diagnosis: Retinoblastoma ​​We at Know the Glow had the pleasure of speaking with Rachel Mayta.  Rachel is a 31 year old Retinoblastoma survivor who bursts with energy, joy and positivity.  She is bound and determined to reach others who are navigating the world with one …