The Canadian Retinoblastoma Research Advisory Board (CRRAB) is composed of patients, health professionals, and researchers from across Canada who participate in patient-partnered research and related activities and events. CRRAB aims to have patients work alongside researchers and health professionals to create meaningful, co-directed retinoblastoma research …
Richard Reiman – Imagination Storybooks
Richard Reiman, founder of Imagination Storybooks, is dedicated to making children’s books accessible for all children. Reiman created the not-for-profit company in 2019 in order to create and distribute children’s books with audio description for blind and low vision children to enjoy. Some books even …
Meet Laite Tuiloma
Over the last year, KnowTheGlow has been able to reach many people around the hoping that KTG’s multiple international campaigns help families as well as healthcare professionals to heightened awareness and knowledge of the glow-related conditions that are preventable or treatable if found in time. …
Ocular Octopus Program Announcement
Know the Glow’s gift program collaboration with The Ocular Octopus is launching March 1, 2023! The Ocular Octopus, an educational, stuffed octopus with removable eyes, is the wonderful creation of Hillary Yeager. Children featured in the KTG Glow Gallery who have lost an eye to a …
KidsVisionCheck
Gary Franklin, Bob Williams, and Alan Bush believe they can make an important contribution to the early detection of childhood vision problems with a new smartphone app they have just launched, KidsVisionCheck. Available in the App and Play Stores, it is a free vision screening …
Meet Christina Gonzalez
At age 23, Christina Gonzalez is reaching tens of thousands on her Instagram page https://www.instagram.com/gogoldforchildhoodcancer/ building awareness about Childhood Cancer! With areas on her page dedicated to Pediatric Leukemia, Sarcoma, DIPG, and Retinoblastoma among others, Christina has found a unique way to not only build …
Meet Lauren Selvik, KTG Ambassador
Lauren joined Know the Glow in 2019 seeking information and support after her son was diagnosed with Retinoblastoma. In October of 2018, Lauren saw the glow in the left eye of her 8-month-old son, Theo. Within weeks, doctors enucleated Theo’s eye, removed 10mm of Theo’s …
Interview with Marissa Gonzalez
When speaking with Marissa Gonzalez one can’t help but be moved by the extraordinary gift of this amazing woman. Both a cancer survivor herself and an advocate helping other retinoblastoma families navigate through the storm, she has been a guiding light for so many families! …
Meet Laurence Desjardins
Over the last few years, KnowTheGlow has made a concerted effort to look beyond the borders of its home base in the United States. We have learned just how important it is to take a more global perspective and have sought to find those who …
Meet Kerri Wilson
Kerri Wilson is a great believer in never walking past an opportunity. She has been an ocularist in Sydney, Australia for 30 years. As Megan Webber, co-founder of Know The Glow, discovered over a zoom conversation the road to becoming an ocularist was not the …