Stories To Inspire Us All
Diagnosis: Unilateral persistent fetal vasculature (PFV) Megan Webber had the chance to connect with Haley Hite, the amazing mother of two daughters, Maci and Myla. Haley shared the incredible journey in her home state of Ohio that led to Myla’s diagnosis. Megan marveled at how …
Know the Glow has recently had the honor of speaking with Kirsten Ramos. Kirsten shared her family’s journey to find the diagnosis for their infant son, Lucas. Back in May of 2022, Kirsten began noticing a strange glow in Lucas’ eye. The glow would become …
It was October 2021, and Canada was in the middle of not only a pandemic but also ophthalmologists across Ontario had decided to go on strike. Baby Nash was only 5 months old when his parents began to notice his eye looked different. The only …
Sam’s father, Charlie, was born with Retinoblastoma. Despite his mother’s concerns, it took five months until his doctors took her seriously and discovered he had this potentially fatal cancer. At the time of his diagnosis, Charlie was six months old and his tumor had advanced …
When Debbie Steed was just eight months old, her aunt noticed her eye appeared cloudy. She was not sure what it was, or even if it was normal but Debbie’s parents vigilantly took her to have her eyes examined. At eight months of age, the …
Our daughter’s glow was noticed when she was five months old. We noticed it in person only when light hit her eye at a certain angle. We were then able to see it in pictures. We took her in to see her regular pediatrician who …
Jake’s JourneyJake was quite likely born with retinoblastoma. His mother,Janice, took him to several doctors because Jake’s eyes wouldoften cross as an infant. The pediatricians told her that without abridge on his nose infants often cross their eyes. When he wasstill crawling, he often crashed …
My name is Siddharta. Siddharta is the childhood name of the Buddhist God Goutam Buddha. My father gave my name after inspiring the life from Goutam Buddha. I was grown up with my family and when I was 3 God blessed with another member of …
Nasa prica je pocela sasvim slucajno, u 03. mjesecu 2022. nas mlađi sin je ozlijedio oko u igri. Kad se smirio htjela sam ga potaknuti da otvori oko pa sam rekla Tamari da mu pokaze kako jedno oko zatvori, a na drugo gleda i da …
KnowTheGlow was delighted to speak with Bruce Horak, an adult RB survivor and an accomplished artist and entertainer who has refused to let anything get in his way! Despite having only 9% of vision in his remaining eye, Bruce has worked in theater for over …
