Diagnosis: PFV When Jackson was born six years ago this December he didn’t open his eyes much the first day, and when he did, he opened his left eye more than his right eye. This worried me a little bit, but as a mom I …
Erica’s Glow Story
Erica knows all too well that her story could have ended much differently had her grandmother not voiced her concerns when Erica was just two years old. In 1996, while the family was living in New York, Erica’s grandmother noticed that her eye turned inward …
Roger’s Glow Story
Diagnosis: Retinoblastoma KnowTheGlow Co-Founder, Megan Webber, often speaks of “glow-incidences” when explaining how many families in the KTG community find their way to each other or how doctors and NGOs cross paths. This was very much the case with Megan’s most recent conversation with Roger …
Kenna’s Glow Story
Diagnosis: Haemangioma Kenna’s Journey… When Kenna was six months old, her mother noticed a glow in Kenna’s left eye. It was not predominantly noticed in pictures. She just caught a glow in her daughter’s eye at unusual angles in the dark. She noticed it but …
Gracie’s Glow Story
Diagnosis: Retinoblastoma Last week, KTG had the chance to meet Gracie, the little girl who “kicked cancer” with her smile and inimitable character, and that’s just what her FB page reflects… https://www.facebook.com/graciesfightagainstretinoblastoma. As the page reads, “Gracie is kicking cancer’s butt!” In a conversation with …
Evie’s Glow Story
In December of 2019, I first noticed what looked like a coating across my daughter Evie’s right eye. I only noticed this when I looked at her from the side angle in the sunlight. I mentioned what I was noticing to my husband who could …
Liam Reid’s Glow Story
Diagnosis: Retinoblastoma When Liam Reid was just two years old his grandmother began noticing a strange “glow” in his eye. This glow was only visible to her in certain lighting and certain angles. However, she informed Liam’s mother, Staci of what she was noticing. At …
Mikey’s Glow Story
Diagnosis: Retinoblastoma Mikey’s story is a bit of a long one, and likely a bit unusual to most. Mikey is three years old and was diagnosed with retinoblastoma when he was two and a half. That is not really where his story starts though. It …
Evie’s Glow Story
In December of 2019, I first noticed what looked like a coating across my daughter Evie’s right eye. I only noticed this when I looked at her from the side angle in the sunlight. I mentioned what I was noticing to my husband who could …
Christopher’s Glow Story
Diagnosis: Persistent Hyperplastic Primary Vitreous Christopher is about to turn 18, but his vision story begins when he was just four months of age. Christopher’s parents loved playing on the floor with their young infant, watching him take in the world and look all around …