Charlotte’s Glow Story

Charlotte’s glow started when she was about 8 months old. I (her mother) started to seea reflection in her left eye when she was in her walker and the light would hit it just right. Noone else in the family could see anything at this …

The Ocularist with Singular Vision

Elisabelle St-Hilaire @Elisbellexo  Credentials: B.Sc.HSS, COO. R.B survivor, former Canadian Football League cheerleader, digital advocate and Ocularist, Elisabelle St-Hilaire shares her story with Know the Glow.  Elisabelle St-Hilaire, an ocularist from Montreal, Quebec, knew at the age of 12 that this was what she wanted …

Meet Dr. Sarah Chamney

Images from a KnowTheGlow global campaign are making an impact on the Emerald Isle.  Dr. Sarah Chamney, a pediatric ophthalmologist in Dublin, said she was deeply moved by the photographs shown to her by Megan Webber, co-founder of KTG. Dr. Chamney felt that the messages …

Meet Katie Peller 

Diagnosis: Retinoblastoma At age 19, Katie Peller is creating the kind of platform on her instagram page (@katies_rb) that she wished she had growing up as a Retinoblastoma (RB) survivor. She is driven to build awareness about RB and the importance of eye health and …

Interview with Dr.  Jairo Mercado

Megan Webber, the co-Founder of KnowTheGlow, was excited to speak with Dr. Jairo Mercado, a young optometrist, and teacher at the School of Optometry at Universidad Nacional Autónoma de Nicaragua (UNAN) who was also honored as an IAPB Eye Health Hero. It was Dr. Mercado, …

Poppy’s Glow Story

Diagnosis: Retinoblastoma Poppy’s story as written by Mum, Rhiannon Watson.  Our Poppy Joy was 3.5 weeks old when I noticed a moon-like reflection in her right eye when I was breastfeeding. When she was in any other position her eyes looked perfectly normal but in …

Mila’s Glow Story

Diagnosis: Retinoblastoma Our Mila… Our daughter Mila (who is now 7yrs old) was diagnosed with Retinoblastoma (Cancer of the retina) at just 16 months of age. Shortly after her 1st birthday I started noticing that sometimes it took her right eye a little longer to …

Atreus’ Glow Story

Diagnosis: Retinoblastoma From the moment Destiny discovered she was pregnant, she says that there were concerns about the viability of her second child.  After a misdiagnosis of a molar pregnancy, where it is feared the placenta isn’t forming normally, she went on to experience early …

Meet Ivana Ristevski

The Canadian Retinoblastoma Research Advisory Board (CRRAB) is composed of patients, health professionals, and researchers from across Canada who participate in patient-partnered research and related activities and events. CRRAB aims to have patients work alongside researchers and health professionals to create meaningful, co-directed retinoblastoma research …