Retinoblastoma

Diagnosis: Retinoblastoma Mikey’s story is a bit of a long one, and likely a bit unusual to most. Mikey is three years old and was diagnosed with retinoblastoma when he was two and a half. That is not really where his story starts though. It …

Know the Glow has recently had the honor of speaking with Kirsten Ramos. Kirsten shared her family’s journey to find the diagnosis for their infant son, Lucas. Back in May of 2022, Kirsten began noticing a strange glow in Lucas’ eye. The glow would become …

It was October 2021, and Canada was in the middle of not only a pandemic but also ophthalmologists across Ontario had decided to go on strike. Baby Nash was only 5 months old when his parents began to notice his eye looked different. The only …

Sam’s father, Charlie, was born with Retinoblastoma. Despite his mother’s concerns, it took five months until his doctors took her seriously and discovered he had this potentially fatal cancer. At the time of his diagnosis, Charlie was six months old and his tumor had advanced …

Diagnosis: Retinoblastoma We first noticed a “cloudiness” in Luca’s right eye in November or December of 2021. He was about 10 months old at the time and has blue eyes, so we thought it had to do with that and really didn’t think anything of …

Diagnosis: Retinoblastoma Ryu is only ten years old but has already fought a battle most will never face in a lifetime. When Ryu was only six months old his mother, Agatha, sensed there was something not quite right. Ryu’s left eye would periodically drift. Agatha …

Carme Julià Ferré, a professor in the Department of Computer Science and Mathematics at la Universitat Rovira i Virgili in Tarragona, Spain  is the extraordinary mother of two beautiful daughters, Anna and Julia. When Julia was eight months old, she was diagnosed with Retinoblastoma. Fortunately …

Diagnosis: Retinoblastoma Our daughter, Isla was diagnosed with bilateral heritable Retinoblastoma at 10 weeks of age. I first mentioned Isla’s eyes to our pediatrician while still in hospital after giving birth. I was worried the way her eyes were tracking seemed irregular and she often …

Diagnosis: Retinoblastoma Kelly Morton developed a strabismus (lazy eye) at a young age. She was treated with patching therapy for over a year and wore glasses to correct her misalignment.  These measures were a complete success and she had no further visual issues. Later in …

Diagnosis: Retinoblastoma I would like to introduce our story with a little background.  I am a 38-year-old retinoblastoma survivor. In 1984, my mom was able to capture the glow in my right eye with flash photography.  This Glow led her to discover my cancer, and …