Alfie’s Glow Story

Diagnosis: Norrie Disease KTG recently had the pleasure of meeting Kelly Leggett, Co-Founder of The Norrie DiseaseFoundation in the UK. Kelly graciously shared her family’s extraordinary journey, whichultimately led to the establishment of this nonprofit organization. Norrie Disease, a conditioncommonly first associated with a glow-like …

Cameron’s Glow Story

Diagnosis: Norrie Disease Cameron was born at 39 weeks 6 days, weighing a healthy 8 pounds 4 ounces, and he was ready to come home hours after his birth. For the first six weeks, he had his days and nights around the wrong way and would …