Retinoblastoma

Diagnosis: Retinoblastoma Evalynn was 10-months-old when her mother, Vanessa, noticed something was “off” with her eye. When Evalynn was sleepy or focusing on something in the distance, Vanessa noticed that Evalynn’s eye would drift off slightly. This “lazy eye” was so subtle, Vanessa seemed to be …

Diagnosis: Retinoblastoma Around his fourth birthday, Donovan’s mother, Sheree, began to notice a “glow” in her son’s eye in photographs. Not knowing much about “the glow” and seeing Donovan as a healthy child, Sheree did not give it much thought. During an annual check-up in May …

Diagnosis: Retinoblastoma Colton Bethune’s mother, Jenny, first saw a picture from Know the Glow right after the birth of her son. Jenny had seen a similar glow in a picture of her 4-month old son, but brushed the glow off as a camera error. However, Colton …

Diagnosis: Retinoblastoma The Cola Bottle Diagnostic Tool By Pat Trotta I was astounded when I found out about Know The Glow and how social media is saving lives through digital photography. Finally, we have something we can do to help children born with Retinoblastoma and other childhood …

Diagnosis: Retinoblastoma Gracie is 2-years-old. I saw a glow in her eye, but it wasn’t all the time, so I took her to a doctor on May 16, 2016. The doctor referred us to an optometrist, and later that same day, she was diagnosed with Retinoblastoma. …

Diagnosis: Retinoblastoma Owen is a second-generation Retinoblastoma fighter. We knew that he would need to be screened from birth, so we scheduled an ophthalmology appointment before he was born. We did a blood draw at our first appointment and met with a genetic counselor who was …

Diagnosis: Retinoblastoma It was Christmas Eve 2008; Aiden had just celebrated his 3rd birthday two weeks prior. Tim, Aiden’s father, was reading the newspaper and came across an article on Retinoblastoma and how a young child had been diagnosed by having the “white-eye reflection” picked up in …

Diagnosis: Retinoblastoma When Hadley was born, her mom and dad noticed some issues with the color of her right eye. Concerned, they mentioned it to their pediatrician who reassured them it was nothing to worry about. Over time, however, the issue seemed to be getting worse. …

Diagnosis: Retinoblastoma In the days leading up to Lizzie’s three-month checkup, her mother, Sarah, began to have concerns over what appeared to be a lazy eye. Sarah felt even though Lizzie was a newborn, her eye should have been tracking better than it was. Sarah also …

Diagnosis: Retinoblastoma When Levi was just about 2 1/2 years old he had what was thought to be a typical toddler accident. This accident was not so typical—it may have saved his life!  One day in June 2015, Levi accidentally ran into the side of a table …