Introducing Leia Hunt, Founder of Leia’s Kids

In a heartfelt meeting between two dynamic advocates, Megan Webber, co-founder of KnowTheGlow (KTG), and Leia Hunt, founder of Leia’s Kids, came together to share their stories, passions, and commitment to helping families affected by childhood cancer. Both women, shaped by personal experiences with retinoblastoma …

Introducing Erin Hagerty, Founder of Mama Respond

In a heartwarming Zoom call, Megan Webber, Co-Founder of KnowTheGlow (KTG), and Helene Dameris, KTG’s Director of Global Outreach, connected with Erin Hagerty, the dynamic Founder of Mama Respond, a grassroots NGO dedicated to maternal and child health and education in Kenya. This introduction was …

Wes’s Glow Story

When Wes was just two years old, his mother noticed an unusual glow in flash photos of her son. Concerned by what she saw, she brought it to the attention of their pediatrician, who dismissed it as nothing alarming. However, trusting her instincts, Wes’ mother …

Introducing Caio Abujamra

While attending the recent IAPB “2030 IN SIGHT LIVE” global conference in Mexico City, Megan Webber, Co-Founder of KnowTheGlow, had the pleasure of meeting Caio Abujamra, president of the Suel Abujamra Institute in Brazil. Caio Abujamra is a dedicated advocate for eye health and awareness, …

Isabelle’s Glow Story

Isabelle’s retinoblastoma journey, written by her mother Jeannie Isabelle (Izzy) began life 100% healthy. She was thriving and hit every developmental milestone.  The tests given at her pediatric visits were all normal, even a red eye reflex exam that was administered at her one year …

KnowTheGlow connected with representatives from REFEADES.

In a world where challenges often seem insurmountable, some dedicate their lives to making a difference, no matter the distance or difficulty. Such was the spirit of a recent conversation between Megan Webber, Co-founder of KnowTheGlow (KTG), and representatives from REFEADES, an organization committed to …

Ethan’s Glow Story

My name is Ethan Yan, and I am a 15-year-old who was diagnosed with RB at 2 years old and want to share my Glow story. Shortly past my second birthday, I had just completed my two-year checkup with my pediatrician, and as any parent …