Diagnosis: Retinoblastoma At age 19, Katie Peller is creating the kind of platform on her instagram page (@katies_rb) that she wished she had growing up as a Retinoblastoma (RB) survivor. She is driven to build awareness about RB and the importance of eye health and …
Megan Webber, the co-Founder of KnowTheGlow, was excited to speak with Dr. Jairo Mercado, a young optometrist, and teacher at the School of Optometry at Universidad Nacional Autónoma de Nicaragua (UNAN) who was also honored as an IAPB Eye Health Hero. It was Dr. Mercado, …
Diagnosis: Retinoblastoma Poppy’s story as written by Mum, Rhiannon Watson. Our Poppy Joy was 3.5 weeks old when I noticed a moon-like reflection in her right eye when I was breastfeeding. When she was in any other position her eyes looked perfectly normal but in …
Diagnosis: Retinoblastoma Our Mila… Our daughter Mila (who is now 7yrs old) was diagnosed with Retinoblastoma (Cancer of the retina) at just 16 months of age. Shortly after her 1st birthday I started noticing that sometimes it took her right eye a little longer to …
As Megan Webber, co-founder of Know the Glow, discovered, it’s hard to believe that Christina had never intended to be an ocularist. A chance encounter with a classmate set the wheels in motion for her extraordinary career. While attending an art history class, the woman …
Diagnosis: Retinoblastoma From the moment Destiny discovered she was pregnant, she says that there were concerns about the viability of her second child. After a misdiagnosis of a molar pregnancy, where it is feared the placenta isn’t forming normally, she went on to experience early …
The Canadian Retinoblastoma Research Advisory Board (CRRAB) is composed of patients, health professionals, and researchers from across Canada who participate in patient-partnered research and related activities and events. CRRAB aims to have patients work alongside researchers and health professionals to create meaningful, co-directed retinoblastoma research …
Richard Reiman, founder of Imagination Storybooks, is dedicated to making children’s books accessible for all children. Reiman created the not-for-profit company in 2019 in order to create and distribute children’s books with audio description for blind and low vision children to enjoy. Some books even …
Diagnosis: Bilateral Retinoblastoma Aleah Cox says that she will be forever grateful that she posted a video of her then four month old daughter, Aariyah on Facebook. At the time, she did not think anything of the post. She frequently posted photos of Aariyah. But …
Written by their mother, Denice Lopez Soon after our first child, Jaylen, was born we noticed that his left eye started to shift bit by bit as he grew. Then, around two or three months of age, we began to notice a glow in Jaylen’s …
