Dr. Debarshi Mustafi never imagined he would one day be at the forefront of revolutionizing genetic testing for retinoblastoma (Rb), but fate, passion, and the guidance of an inspiring mentor led him down this path. Originally from the southside of Chicago, Dr. Mustafi’s journey took …
Introducing Fred Hollows Foundation
KnowTheGlow (KTG) and The Fred Hollows Foundation in Kenya recently came together in a powerful conversation about their shared mission: preventing avoidable blindness through early detection and intervention. What began as an introduction quickly became an exciting exploration of how the two organisations could work …
Africa Updates from KTG Program Manager Ruth: Feb 2025
Joining Know the Glow in January 2025 was an exciting step toward expanding childhood blindness awareness across Africa. My transition coincided with unforeseen challenges, including the devastating Los Angeles fires, which temporarily disrupted my colleagues’ normal operations. Despite these circumstances, the team remained supportive, offering …
Introducing Abas Hassan Hussein
Executive Director of the Somali Social Welfare Agency At KnowTheGlow (KTG), we are continually inspired by the remarkable individuals and organizations that join us in our mission to eradicate preventable childhood blindness. We had the privilege of meeting with Abas Hassan Hussein, Executive Director of …
Samuel’s Glow story
as written by his mother, Amanda Devaney Samuel was a very healthy little boy, never having as much as an ear infection for the first three years of his life. But one day right before Christmas of 2022, his father and I began to notice …
Introducing Kenya Ambassador, Zaakirah Nayyar Muhammad
I officially joined KnowTheGlow (KTG) as an ambassador in 2025, but my connection to the organization began years earlier in the mid 2010s through the WeChope and RB Facebook Groups. As a bilateral retinoblastoma (RB) survivor diagnosed at just six months old, my mother, Khaidah, …
Spreading Awareness at UNIBEN Health Week!
KnowTheGlow was honored to take part in the Nigerian Optometric Students’ Association’s UNIBEN Health Week, joining hands to raise awareness about the Glow and its significance in detecting early signs of childhood blindness. On December 10th, students rallied around the University of Benin community, spreading …
Introducing Ruth Ngaruiya
Based in Nairobi, Kenya, Ruth Ngaruiya brings a wealth of experience and passion to her role as Program Manager for Africa at Know the Glow. Ruth’s commitment to supporting children with cancer is not a new one. When her high school friend Grace’s son was …
Introducing Dr. Rebecca Claire Lusobya, Ophthalmologist
In the heart of Kampala, Uganda, a determined force in pediatric ophthalmology is quietly making waves. Dr. Rebecca Claire Lusobya, a young mother of four daughters under nine, juggles her roles as a mother, surgeon, and advocate with remarkable grace and determination. Her story is …
Introducing Kyle Coon, Paralympian and Author
In early September, just weeks after returning to Colorado Springs, Colorado, from competing in his second Paralympic Games in Paris, paratriathlete Kyle Coon was contacted by Megan Webber, Co-Founder of Know the Glow (KTG), and Helene Dameris, KTG’s Director of Global Outreach. Inspired by his …