Diagnosis: Bilateral Retinoblastoma Rocky, now a cheerful and energetic 5-year-old, has come a long way after a grueling battle with bilateral retinoblastoma. His journey began when he was just 4 months old, during a playful session of tummy time with his loving mother, Kara. It …
Flynn’s Glow Story
Meeting Katie and Rich Fairhurst from the UK and viewing the Instagram page charting the month-to-month milestone growth of their darling son, Flynn, you would never guess the whirlwind they have recently experienced. Despite the four-month roller coaster, Katie and Rich have been able to …
Jaeden’s Glow Story
I first noticed something different with my otherwise healthy and happy six month old daughter in June of 2018. Jaeden was laughing and playing in her stroller when I noticed her left eye was red and irritated. I assumed she had accidentally scratched her eye …
Christian’s Glow Story
In the bustling heart of Nairobi, Grace Mbugua, a devoted mother, found herself on a journey she could never have anticipated. Her son, Christian, was just a year and five months old when their life took a sudden and unexpected turn. It all began when …
Harry’s Glow Story
I had dropped Harry off at school on the morning of Saturday, November 5th, 2022 for a rugby game and when I collected him at the end of the game he had sustained an injury to his right eye. His eye had been caught by …
Logan’s Glow Story
Unshakable Love: A Mother’s Journey of Strength and Resilience In Nairobi, Kenya, Rhoda Mboga, a loving mother of three, was living a bustling and busy life. Her second child, Logan Mboga, had just turned six months old. At this sweet age, most parents delight in …
Mama and Daughter’s Glow Story (Tina & Gemma)
Hi, I am Tina, a retinoblastoma survivor of 42 years. When I was six months old, my mother noticed that my eyes would glow like a cat’s when she would lay me down at night. She mentioned this at my 6-month check-up, where they found …
Carla Soto Vargas: Overcoming Challenges and Advocating for Childhood Cancer Support in Chile
At the age of four, Carla Soto Vargas was diagnosed with Class 2B Unilateral Retinoblastoma, a rare form of eye cancer. Her mother’s keen observation of a flash photograph, which revealed a peculiar glow, led to the timely detection of the tumor. The journey through …
A Family’s Journey with Coats’ Disease: Finding Support and Making a Difference
When a family receives a medical diagnosis that changes their lives forever, their journey becomes one of resilience, determination, and hope. The Richardson family, residing in Nashville, Tennessee, found themselves facing such a situation when their youngest child, Kip, was diagnosed with Coats’ Disease at …
Dane’s Glow Story
Dane’s story with a unilateral congenital cataract Our story began when Dane was six months old. I took him to his general practitioner for hisregular checkup and to receive his immunisations. The visit was all very routine until thedoctor checked Dane’s eyes. She said that …