Stories To Inspire Us All
I first noticed something different with my otherwise healthy and happy six month old daughter in June of 2018. Jaeden was laughing and playing in her stroller when I noticed her left eye was red and irritated. I assumed she had accidentally scratched her eye …
In the bustling heart of Nairobi, Grace Mbugua, a devoted mother, found herself on a journey she could never have anticipated. Her son, Christian, was just a year and five months old when their life took a sudden and unexpected turn. It all began when …
I had dropped Harry off at school on the morning of Saturday, November 5th, 2022 for a rugby game and when I collected him at the end of the game he had sustained an injury to his right eye. His eye had been caught by …
Unshakable Love: A Mother’s Journey of Strength and Resilience In Nairobi, Kenya, Rhoda Mboga, a loving mother of three, was living a bustling and busy life. Her second child, Logan Mboga, had just turned six months old. At this sweet age, most parents delight in …
Hi, I am Tina, a retinoblastoma survivor of 42 years. When I was six months old, my mother noticed that my eyes would glow like a cat’s when she would lay me down at night. She mentioned this at my 6-month check-up, where they found …
At the age of four, Carla Soto Vargas was diagnosed with Class 2B Unilateral Retinoblastoma, a rare form of eye cancer. Her mother’s keen observation of a flash photograph, which revealed a peculiar glow, led to the timely detection of the tumor. The journey through …
When a family receives a medical diagnosis that changes their lives forever, their journey becomes one of resilience, determination, and hope. The Richardson family, residing in Nashville, Tennessee, found themselves facing such a situation when their youngest child, Kip, was diagnosed with Coats’ Disease at …
Dane’s story with a unilateral congenital cataract Our story began when Dane was six months old. I took him to his general practitioner for hisregular checkup and to receive his immunisations. The visit was all very routine until thedoctor checked Dane’s eyes. She said that …
In a candid interview, Dr. Kahaki Kimani, a seasoned pediatric ophthalmologist and senior lecturer at the Department of Ophthalmology, University of Nairobi, delved into the touching journey of Tabitha Murigi, who discovered her son Osteen’s retinoblastoma. Tabitha, married to Samuel Kagiri and a mother of …
Diagnosis: Norrie Disease KTG recently had the pleasure of meeting Kelly Leggett, Co-Founder of The Norrie DiseaseFoundation in the UK. Kelly graciously shared her family’s extraordinary journey, whichultimately led to the establishment of this nonprofit organization. Norrie Disease, a conditioncommonly first associated with a glow-like …
