Diagnosis: Retinoblastoma When Rai was born, everything seemed to be perfect and we never imagined that his life, nor ours, would head towards an unknown journey when at 4 months a strange light appeared in Rai’s eyes. Our son is a lucky child, since thanks …
Eli’s Glow Story
Diagnosis: Retinoblastoma On Saturday, the 30th of March, little did we know our world would be turned upside down. After Eli’s favorite time of the week on Saturday when he takes swimming lessons he was so eager to race out the door. We set off …
Victor’s Glow Story
Diagnosis: Bilateral Retinoblastoma When your infant child is newly diagnosed with retinoblastoma, a parent can feel alone and as if they are in a vacuum of uncertainty. Laura Bermejo and her husband Víctor Vázquez found themselves in this situation when their 3 ½-month-old son …
Freya’s Glow Story
Diagnosis: Retinoblastoma We at Know theGlow feel that one of the best gifts to come from TikTok is the opportunity for wonderful Glow families to bravely share their journeys while simultaneously building awareness about what to watch for in flash photography. The fact that TikTok …
Noa’s Glow Story
Diagnosis: Retinoblastoma Noa was always a very good and calm baby. Her motor development was totally advanced, always very agile and that is why we never suspected that she had any problem with her vision. When she was about one year old, I started to …
Charlotte’s Glow Story
Charlotte’s glow started when she was about 8 months old. I (her mother) started to seea reflection in her left eye when she was in her walker and the light would hit it just right. Noone else in the family could see anything at this …
The Ocularist with Singular Vision
Elisabelle St-Hilaire @Elisbellexo Credentials: B.Sc.HSS, COO. R.B survivor, former Canadian Football League cheerleader, digital advocate and Ocularist, Elisabelle St-Hilaire shares her story with Know the Glow. Elisabelle St-Hilaire, an ocularist from Montreal, Quebec, knew at the age of 12 that this was what she wanted …
Meet Katie Peller
Diagnosis: Retinoblastoma At age 19, Katie Peller is creating the kind of platform on her instagram page (@katies_rb) that she wished she had growing up as a Retinoblastoma (RB) survivor. She is driven to build awareness about RB and the importance of eye health and …
Poppy’s Glow Story
Diagnosis: Retinoblastoma Poppy’s story as written by Mum, Rhiannon Watson. Our Poppy Joy was 3.5 weeks old when I noticed a moon-like reflection in her right eye when I was breastfeeding. When she was in any other position her eyes looked perfectly normal but in …
Mila’s Glow Story
Diagnosis: Retinoblastoma Our Mila… Our daughter Mila (who is now 7yrs old) was diagnosed with Retinoblastoma (Cancer of the retina) at just 16 months of age. Shortly after her 1st birthday I started noticing that sometimes it took her right eye a little longer to …