Stories To Inspire Us All
Diagnosis: Retinoblastoma KnowTheGlow Co-Founder, Megan Webber, often speaks of “glow-incidences” when explaining how many families in the KTG community find their way to each other or how doctors and NGOs cross paths. This was very much the case with Megan’s most recent conversation with Roger …
Diagnosis: Haemangioma Kenna’s Journey… When Kenna was six months old, her mother noticed a glow in Kenna’s left eye. It was not predominantly noticed in pictures. She just caught a glow in her daughter’s eye at unusual angles in the dark. She noticed it but …
Diagnosis: Retinoblastoma Last week, KTG had the chance to meet Gracie, the little girl who “kicked cancer” with her smile and inimitable character, and that’s just what her FB page reflects… https://www.facebook.com/graciesfightagainstretinoblastoma. As the page reads, “Gracie is kicking cancer’s butt!” In a conversation with …
In December of 2019, I first noticed what looked like a coating across my daughter Evie’s right eye. I only noticed this when I looked at her from the side angle in the sunlight. I mentioned what I was noticing to my husband who could …
Diagnosis: Retinoblastoma When Liam Reid was just two years old his grandmother began noticing a strange “glow” in his eye. This glow was only visible to her in certain lighting and certain angles. However, she informed Liam’s mother, Staci of what she was noticing. At …
Diagnosis: Retinoblastoma Mikey’s story is a bit of a long one, and likely a bit unusual to most. Mikey is three years old and was diagnosed with retinoblastoma when he was two and a half. That is not really where his story starts though. It …
In December of 2019, I first noticed what looked like a coating across my daughter Evie’s right eye. I only noticed this when I looked at her from the side angle in the sunlight. I mentioned what I was noticing to my husband who could …
Diagnosis: Persistent Hyperplastic Primary Vitreous Christopher is about to turn 18, but his vision story begins when he was just four months of age. Christopher’s parents loved playing on the floor with their young infant, watching him take in the world and look all around …
Diagnosis: Unilateral persistent fetal vasculature (PFV) Megan Webber had the chance to connect with Haley Hite, the amazing mother of two daughters, Maci and Myla. Haley shared the incredible journey in her home state of Ohio that led to Myla’s diagnosis. Megan marveled at how …
Know the Glow has recently had the honor of speaking with Kirsten Ramos. Kirsten shared her family’s journey to find the diagnosis for their infant son, Lucas. Back in May of 2022, Kirsten began noticing a strange glow in Lucas’ eye. The glow would become …
