In December of 2019, I first noticed what looked like a coating across my daughter Evie’s right eye. I only noticed this when I looked at her from the side angle in the sunlight. I mentioned what I was noticing to my husband who could …
Christopher’s Glow Story
Diagnosis: Persistent Hyperplastic Primary Vitreous Christopher is about to turn 18, but his vision story begins when he was just four months of age. Christopher’s parents loved playing on the floor with their young infant, watching him take in the world and look all around …
Myla’s Glow Story
Diagnosis: Unilateral persistent fetal vasculature (PFV) Megan Webber had the chance to connect with Haley Hite, the amazing mother of two daughters, Maci and Myla. Haley shared the incredible journey in her home state of Ohio that led to Myla’s diagnosis. Megan marveled at how …
Lucas’s Glow Story
Know the Glow has recently had the honor of speaking with Kirsten Ramos. Kirsten shared her family’s journey to find the diagnosis for their infant son, Lucas. Back in May of 2022, Kirsten began noticing a strange glow in Lucas’ eye. The glow would become …
Know the Glow’s gift program collaboration with The Ocular Octopus – launching December 1st!
The Ocular Octopus, an educational, stuffed octopus with removable eyes, is the wonderful creation of Hillary Yeager. Children featured in the KTG Glow Gallery who have lost an eye to a glow-related eye disease will be sent this fun yellow octopus and its accompanying book …
Nash’s Glow Story
It was October 2021, and Canada was in the middle of not only a pandemic but also ophthalmologists across Ontario had decided to go on strike. Baby Nash was only 5 months old when his parents began to notice his eye looked different. The only …
Sam’s Glow Story
Sam’s father, Charlie, was born with Retinoblastoma. Despite his mother’s concerns, it took five months until his doctors took her seriously and discovered he had this potentially fatal cancer. At the time of his diagnosis, Charlie was six months old and his tumor had advanced …
Debbie’s Glow Story
When Debbie Steed was just eight months old, her aunt noticed her eye appeared cloudy. She was not sure what it was, or even if it was normal but Debbie’s parents vigilantly took her to have her eyes examined. At eight months of age, the …
Meet Dhiman Halder, KTG Ambassador
Dhiman Halder is an amazing Ambassador for Know the Glow in Bangladesh. As a professional changemaker, Dhiman has a long track record of working with organizations like BRAC, CARE, and Practical Action to realize the potential of disadvantaged people. Dhiman is the father of a …
KTG on CHVN Radio Canada
Recently, our own Christina Gill was interviewed by CHVN Radio Canada regarding the awareness campaign we are currently running in that country! She spoke about the need for awareness and education and about her personal journey with her son, Eli, who has lost an eye …