Megan Webber, Helene Dameris and our new partnership liaison, Caitlin Villante, are looking forward to attending the IAPB conference in Mexico City this June! At the conference we hope to meet with other IAPB members from around the world to discuss issues surrounding awareness of …
Ocular Oncology Symposium Athens, Greece – 30 May – June 1 2024
We are delighted to announce that Helene Dameris, Director of Global Outreach for KnowTheGlow, will be attending the upcoming combined conference of the 1st Ocular Oncology Symposium and the 10th Annual European Retinoblastoma Meeting Group. Scheduled to take place from May 30th to June 1st, …
Calling all Coats’ Patients and Parents!
Help a Coats’ Patient and High School student researcher to further his research on Coats’ Disease The Jack McGovern Coats’ Disease Foundation is happy to support Coats’ patient and high school student John, who is participating in a three-year science program in which he is …
Bella’s Glow Story
Bella O’Neill was just 3 when we took her to Specsavers for a lazy eye. Being a young mum who would have thought 3 weeks later we would find ourselves at The Royal London Hospital seeing Dr. Reddy, hearing words that kept repeating in an …
Max Ager’s Glow Story
Max is now twelve and was diagnosed just after his 2nd birthday so his journey spans nearly a decade! When we first started the process of diagnosis we saw a specialist, Dr. Hildebrand at The Royal Berkshire Hospital in Reading, UK. He was so lovely …
Meet Dr. Jeong-Hun Kim
In the realm of ophthalmology, the fusion of clinical expertise and scientific inquiry often leads to groundbreaking advancements. Prof. Jeong-Hun Kim, a clinician-scientist for inherited retinal disease (IRD) and retinopathy and distinguished pediatric retina specialist, serves as a Professor at Department of Biomedical Sciences & …
Tiago and Daiana Leifert’s Fight Against Childhood Cancer: A Campaign for Awareness
Tiago Leifert, a nationally acclaimed Brazilian journalist and presenter, and his family have embarked on a remarkable journey to raise awareness about a condition that impacts children across Brazil – retinoblastoma. In a conversation with KnowTheGlow Co-Founder Megan Webber, Tiago shared the story of his …
Amir Porter’s Glow Story
Chantal Porter says the first time she considered her 3 year old son, Amir, may have a visual issue was the summer of 2023 when her 7 year old daughter told her that she was noticing a “Glow” in her brother’s eye. At the time, …
Macy Latif’s Glow Story
Jennifer Villamar had what she calls a “traumatic” pregnancy. Developing Hyperemesis Gravidarum, she suffered extreme, persistent nausea and vomiting that led to significant, life threatening weight loss. Jennifer spent over 13 weeks in the hospital trying to control her condition with a variety of medications. …
Colter Dammann’s Glow Story
Written by Matt & Keely Dammann (Colter’s parents) Around Colter’s first birthday we started to notice the iris of his right eye was a darker shade of blue. As the summer went on, we noticed it continue to darken compared to his left eye. Initially, …