Emerson’s Glow Story

Diagnosis: Retinoblastoma Rochelle doesn’t remember exactly when she first noticed a flash in her son, Emerson’s, eye.  It happened so infrequently, only occurring in certain lights and angles.  When it did happen, it was so quick, it was easy to shrug off as something she’d …

Meet Laite Tuiloma

Over the last year, KnowTheGlow has been able to reach many people around the hoping that KTG’s multiple international campaigns help families as well as healthcare professionals to heightened awareness and knowledge of the glow-related conditions that are preventable or treatable if found in time. …

Hazel’s Glow Story

Diagnosis: Retinoblastoma Recently, Co-Founder Megan Webber had the opportunity to catch up with Melisa Goss Farke, author of the article entitled A Sight to Behold https://www.agupdate.com/tristateneighbor/a-sight-to-behold/article_592c08c2-5acf-11ed-93f2-432f3957d02d.html detailing the journey of Melisa’s daughter, Hazel, with Retinoblastoma.    Megan was so touched by the wording of the …

Eliza’s Glow Story

Diagnosis: Retinoblastoma Know the Glow was very honored to recently talk with McKenzie Robicheaux and hear about the amazing journey of her daughter Eliza.  Eliza was only four months old when she was diagnosed with bilateral retinoblastoma after her pediatrician noticed an abnormal reflex during …

Ocular Octopus Program Announcement

Know the Glow’s gift program collaboration with The Ocular Octopus is launching March 1, 2023!  The Ocular Octopus, an educational, stuffed octopus with removable eyes, is the wonderful creation of Hillary Yeager. Children featured in the KTG Glow Gallery who have lost an eye to a …

Shelby’s Glow Story

Shelby Perry, the founder, and creator of Eyehesive, knows firsthand the value and importance of turning negatives into positives and being a force for good.  “One strong determined day at a time” is a quote by which Shelby abides and one that constantly reminds her …

Brian’s Glow Story

Diagnosis: Retinoblastoma Early in December, Know the Glow Co-Founder Megan Webber had the pleasure of speaking  with Brian Stanley.  Brian is an adult retinoblastoma survivor changing the future for those wearing prosthetic eyes with machine tool technology.  Brian   has taken social media by storm …

Jackson’s Glow Story

Diagnosis: PFV When Jackson was born six years ago this December he didn’t open his eyes much the first day, and when he did, he opened his left eye more than his right eye. This worried me a little bit, but as a mom I …

Erica’s Glow Story

Erica knows all too well that her story could have ended much differently had her grandmother not voiced her concerns when Erica was just two years old. In 1996, while the family was living in New York, Erica’s grandmother noticed that her eye turned inward …

Roger’s Glow Story

Diagnosis: Retinoblastoma KnowTheGlow Co-Founder, Megan Webber, often speaks of “glow-incidences” when explaining how many families in the KTG community find their way to each other or how doctors and NGOs cross paths. This was very much the case with Megan’s most recent conversation with Roger …