Diagnosis: Retinoblastoma Our Mila… Our daughter Mila (who is now 7yrs old) was diagnosed with Retinoblastoma (Cancer of the retina) at just 16 months of age. Shortly after her 1st birthday I started noticing that sometimes it took her right eye a little longer to …
As Megan Webber, co-founder of Know the Glow, discovered, it’s hard to believe that Christina had never intended to be an ocularist. A chance encounter with a classmate set the wheels in motion for her extraordinary career. While attending an art history class, the woman …
Diagnosis: Retinoblastoma From the moment Destiny discovered she was pregnant, she says that there were concerns about the viability of her second child. After a misdiagnosis of a molar pregnancy, where it is feared the placenta isn’t forming normally, she went on to experience early …
The Canadian Retinoblastoma Research Advisory Board (CRRAB) is composed of patients, health professionals, and researchers from across Canada who participate in patient-partnered research and related activities and events. CRRAB aims to have patients work alongside researchers and health professionals to create meaningful, co-directed retinoblastoma research …
Richard Reiman, founder of Imagination Storybooks, is dedicated to making children’s books accessible for all children. Reiman created the not-for-profit company in 2019 in order to create and distribute children’s books with audio description for blind and low vision children to enjoy. Some books even …
Diagnosis: Bilateral Retinoblastoma Aleah Cox says that she will be forever grateful that she posted a video of her then four month old daughter, Aariyah on Facebook. At the time, she did not think anything of the post. She frequently posted photos of Aariyah. But …
Written by their mother, Denice Lopez Soon after our first child, Jaylen, was born we noticed that his left eye started to shift bit by bit as he grew. Then, around two or three months of age, we began to notice a glow in Jaylen’s …
Diagnosis: Retinoblastoma Rochelle doesn’t remember exactly when she first noticed a flash in her son, Emerson’s, eye. It happened so infrequently, only occurring in certain lights and angles. When it did happen, it was so quick, it was easy to shrug off as something she’d …
Over the last year, KnowTheGlow has been able to reach many people around the hoping that KTG’s multiple international campaigns help families as well as healthcare professionals to heightened awareness and knowledge of the glow-related conditions that are preventable or treatable if found in time. …
Diagnosis: Retinoblastoma Recently, Co-Founder Megan Webber had the opportunity to catch up with Melisa Goss Farke, author of the article entitled A Sight to Behold https://www.agupdate.com/tristateneighbor/a-sight-to-behold/article_592c08c2-5acf-11ed-93f2-432f3957d02d.html detailing the journey of Melisa’s daughter, Hazel, with Retinoblastoma. Megan was so touched by the wording of the …
