Meet our new KTG Ambassador from the USA – Kristen Ramos!

My name is Kirsten Ramos and I work at Waianae Coast Comprehensive Health Center as a certified clinical medical assistant in the pediatric clinic. I volunteer round the clock as an area coordinator and dispatcher for Now I Lay Me Down to Sleep which does Bereavement Photography for perinatal and NICU loss. I’ve been with the Health Center since 2022 and the volunteer work I’ve been doing since 2018!

I live on the island of Oahu in Waianae and am the mother of four children – Elijah, Ethan, my angel son, Liam (the reason for my volunteer work), and Lucas, my youngest!

I’m delighted to represent KnowTheGlow as a US Ambassador and look forward to continuing to find ways to build awareness about the glow and the importance of finding this symptom in time to help more children find their way to care.  I have enjoyed working to help advise other parents of children being treated for Retinoblastoma on ways they can manage through the difficult journey and required travel that accompanies such a diagnosis and look forward to representing KTG at events and conferences in the future.